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Ms Rebekah Smith
Phone: +61 2 6207 8911
Ms Judith Clarke
Phone: +64 3 353 0055
Ms Tamara Goninon
Phone: +61 3 6226 4602
Ms Serina Tuess
Phone: +61 2 8374 5607
A/Prof Mary-Anne Kedda
Phone: +61 7 3176 7432
Ms Melanie Evans
Phone: +61 3 9903 0245
Ms Lisa Smith
Phone: +61 8 8922 7634
Dr Michael O’Callaghan
Phone: +61 8 8275 1169
Dr Angela Ives
Phone: +61 8 6151 1124
Frequently Asked Questions
Find answers to commonly asked questions below, or contact us on 1800 771 410 (Australia) or +64 3 355 2426 (New Zealand).
What is the purpose of this research?
The aim of the PCOR-ANZ is to improve the quality of care provided to men with prostate cancer. Information from the registry will be used to monitor care provided, including treatment, complications and both short and longer term outcomes of care. This information will be used to help identify trends and whether gaps exist in services provided in Australia and New Zealand.
This is an international research project funded by Movember Foundation, with the support of all specialty medical societies managing prostate cancer disease and local organisations in each Participating Organisation.
The registry will collect both your personal and clinical information which we need to keep identifiable so that we can periodically link the PCOR-ANZ to State Registry for Births, Deaths and Marriages and to the National Death Index.
What are the possible risks?
Researchers will have access to your medical record, however they must comply with very strict privacy principles. Researchers will not release your identifiable information to any person or organisation outside the registry, Cancer Registry and the Death Registry. No report will contain any identifying information about you.
Can I access information about me?
In accordance with relevant Australian privacy and other relevant laws, you have the right to access the information collected and stored by the researchers about you. Please email email@example.com if you would like to access your information.
What does participation in the registry involve?
If you are happy to have your details sent to the PCOR-ANZ, we will access your hospital medical record to collect information for the registry. You may receive a short survey to assess your quality of life.
Do I have to take part?
Participation in any research project is voluntary. You are free to withdraw from the project at any stage. If you do not contact us within two weeks, we will assume that you are happy for us to collect required information. Your decision whether to take part or not, will not affect your relationship with your treating hospital or specialist.
Is this research project approved?
This research project has been approved by the Monash University Human Research Ethics Committee.
What are the possible benefits of participating?
You will receive no direct benefit from contributing to this registry. A major indirect benefit from the registry will be the ability to monitor quality of care across Australia and New Zealand to ensure the delivery of the best possible health service to men with prostate cancer.
How will you use my information?
Data within the registry will be identifiable. It will be safeguarded through State and Commonwealth privacy laws. Information will be stored securely, with access restricted only to registry officers. If you do not opt off you will be agreeing to have this information used for research.
Who can I contact?
If you would like further information concerning this project please email us at firstname.lastname@example.org or free call 1800 771 410.
If you wish to contact someone, independent of the study, about ethical issues or your rights or to make a complaint, you may contact the Monash University Executive Officer on +61 3 990 52052 or via email email@example.com, quoting project number CF14/1693 – 2014000832.